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Girl, 12, is dying before her mums eyes due to lifelong phobia of eating

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A mother has revealed her anguish at watching her daughter waste away due to a crippling phobia of eating.

Grace Daw, 12, has lived with the fear of choking her whole life, and has severe difficulty eating anything outside of her unusual diet of crisps, ice cream and jalapenos.

Mum Janine, 48, says that Graces condition has become so severe that doctors have warned it is only a matter of time before her organs begin to fail.

Collect of Grace Daw,12, struggling to eat at dinner time.Grace has lived with a fear of choking her whole life, seeing her weight plummet to a drastic 4 stone.See SWNS story SWTPeat.A twelve-year-old schoolgirl has seen her weight plummet to FOUR stone due to her crippling phobia of eating. Grace Daw has lived with a fear of choking her whole life and struggles to eat anything outside of her diet of crisps, ice-cream and jalapenos. Her devastated mum Janine, 48, says each mouthful can take up to 40 minutes to eat and anything which ?requires the effort of chewing? will see Grace rush to the toilet to throw it back up. Grace's crippling condition has become so severe doctors have warned it to be only a matter of time before her organs start failing.

Grace Daw,12, struggles to eat at dinner time due to her fear of choking: (Picture: Janine Daw/SWNS.COM)

Grace can take up to 40 minutes to eat each mouthful and anything which requires chewing will see her rush to the toilet and vomit.

The schoolgirls weight has dropped to just four stone and she has to be fed through a tube which goes straight into her stomach, called a mic-key.

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It was first fitted when she just four months old.

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Mum Janine told the Sun: Last year I was over the moon because she ate two chocolates from her advent calendar.

Shes incredibly pale and has dark circles around her eyes. She just constantly looks ill. I just feel completely guilty.

Collect Grace Daw's feeding button,which she has had since she was four months old .Grace has lived with a fear of choking her whole life, seeing her weight plummet to a drastic 4 stone.See SWNS story SWTPeat.A twelve-year-old schoolgirl has seen her weight plummet to FOUR stone due to her crippling phobia of eating. Grace Daw has lived with a fear of choking her whole life and struggles to eat anything outside of her diet of crisps, ice-cream and jalapenos. Her devastated mum Janine, 48, says each mouthful can take up to 40 minutes to eat and anything which ?requires the effort of chewing? will see Grace rush to the toilet to throw it back up. Grace's crippling condition has become so severe doctors have warned it to be only a matter of time before her organs start failing.

Grace Daw has had a feeding button fitted since she was four months old (Picture: Janine Daw/SWNS.COM)

Ive exhausted every avenue. I just feel completely hopeless.

Graces inability to keep food down started as a newborn when she would instantly throw up after breastfeeding and bottle feeds.

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Just months after having the mic-key fitted, doctors discovered that she had ALPACA syndrome – a rare congenital heart defect where the heart doesnt get enough oxygen.

Medical staff believed that the condition was behind Graces food and choking problems and at nine-months-old she underwent open heart surgery.

However, days after the gruelling eight hour operation, Janine noticed that Grace still had no interest in eating.

Collect Grace Daw,12, with her mother Janine,48.Grace has lived with a fear of choking her whole life, seeing her weight plummet to a drastic 4 stone.August 2018.See SWNS story SWTPeat.A twelve-year-old schoolgirl has seen her weight plummet to FOUR stone due to her crippling phobia of eating. Grace Daw has lived with a fear of choking her whole life and struggles to eat anything outside of her diet of crisps, ice-cream and jalapenos. Her devastated mum Janine, 48, says each mouthful can take up to 40 minutes to eat and anything which ?requires the effort of chewing? will see Grace rush to the toilet to throw it back up. Grace's crippling condition has become so severe doctors have warned it to be only a matter of time before her organs start failing.

Mum Janine, 48, says each mouthful can take Grace up to 40 minutes to eat (Picture: Janine Daw/SWNS.COM)

Grace being fed through a tube before mic-key button was feeded at 4 months.Grace has lived with a fear of choking her whole life, seeing her weight plummet to a drastic 4 stone.See SWNS story SWTPeat.A twelve-year-old schoolgirl has seen her weight plummet to FOUR stone due to her crippling phobia of eating. Grace Daw has lived with a fear of choking her whole life and struggles to eat anything outside of her diet of crisps, ice-cream and jalapenos. Her devastated mum Janine, 48, says each mouthful can take up to 40 minutes to eat and anything which ?requires the effort of chewing? will see Grace rush to the toilet to throw it back up. Grace's crippling condition has become so severe doctors have warned it to be only a matter of time before her organs start failing.

Graces inability to keep food down started as a newborn (Picture: Janine Daw/SWNS.COM)

Doctors have since been unable to remove her food tube as Grace is only able to eat a palm full of food a day due to her phobia.

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A number of psychologists believe that she suffers from pseudodysphagia – a chronic fear of choking – but Janine said nobody has come up with a solution.

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The 48-year-old has been forced to quit her job as a fitness instructor to become Graces full time carer.

Its not anorexia or bulimia. Its been a constant battle all her life to be heard, Janine said.

Collect of Grace Daw,12..Grace has lived with a fear of choking her whole life, seeing her weight plummet to a drastic 4 stone.See SWNS story SWTPeat.A twelve-year-old schoolgirl has seen her weight plummet to FOUR stone due to her crippling phobia of eating. Grace Daw has lived with a fear of choking her whole life and struggles to eat anything outside of her diet of crisps, ice-cream and jalapenos. Her devastated mum Janine, 48, says each mouthful can take up to 40 minutes to eat and anything which ?requires the effort of chewing? will see Grace rush to the toilet to throw it back up. Grace's crippling condition has become so severe doctors have warned it to be only a matter of time before her organs start failing.

Doctors have warned it will only be a matter of time before Graces organs start failing.
(Picture: Janine Daw/SWNS.COM)

In a bid to save her daughter, Janine has decided to up her daughters night feeds and has also enrolled on a childrens mental health course at college to find answers herself.

She said: Im studying hard so I can understand the eating phobia as nothing has worked for Grace.

Thats how desperate its become.

This has a knock-on effect on my other kids too. Im watching my family fall apart in front of my very eyes.

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