Doctors initially thought a toddlers mystery illness was a severe milk allergy or reflux.
Tristan Hutchings, two, was having up to 150 spasms a day when his parents Adrian Hutchings, 38, and Sarah Huyton, 33, took him to the GP.
He was just a few weeks old at the time but he did not get diagnosed until he was nine months old because doctors did not spot his condition.
He was eventually diagnosed with West Syndrome after being referred to a paediatrician.
Mr Hutchings from Ollerton, Nottinghashire, said: I dont want other parents to go through what we have gone through.
The late diagnosis has left Tristam with cerebral palsy and a lot of other problems and he is so far behind in his developent. He cant hold his own head up, walk or talk.
We need to raise awareness of the symptoms because the earlier the diagnosis the better.
He was having up to 150 spasms a day and he would be juddering and crying and we just knew something was wrong. It is a parents instinct.
West Syndrome is better known as infantile spasms and occurs when children suffer periodic seizures or spasms through abnormal brain activity
Tristan is now doing much better and is a very giggly and smiley toddler.
Mr Hutchings hopes his son will be able to walk and talk after doctors did not rule it out.